In the zone with prednisone

So, I had my follow up visit with my rheumatologist this week – my double stranded dna numbers are coming down, slowly, but surely, thanks to the prednisone I’ve been taking.  I still feel tired and achey, I told the good doctor, and we decided to keep me on a low dose of prednisone for “a little bit and see how it goes.”  The other option is to start taking methotrexate, but my Oncologist doesn’t want me to.  So, for now, I’ll stay in the “zone” with my prednisone.  I feel a tad better on it, but not a whole lot.  Since Lupus is a life-long illness, I have to wonder what the long-term effects will be of taking all this medication.  My doctor said one of the side effects of prednisone is osteoporosis, which I’m already dealing with from my post-breast cancer medication.  So, there’s another medication I’ll need to take to help reverse or slow down the bone loss.  I had to take an Oxycodone pill the other night because I was in so much pain, and it did help – I just hate to be dependent on so many meds.  But, I have to do what I have to do to slow down the disease process, prevent a recurrence of breast cancer, and simply get through the day.  I work full time, have two awesome but very energetic kids, a wonderful partner who I don’t get to spend enough time with, an aging Mom, and am tired and achey every day of my life.  I’m not complaining, just explaining.  I feel very blessed to have the life I do, even though it’s tough at times.  So, I’ll take my meds and try to find other ways as well to deal with my symptoms.  I’m watching what I eat and trying to exercise on a regular basis.  I try to keep a positive attitude and focus on the things I can do, rather than what I can’t.  I write this blog and make jewelry as a creative outlet.  I also pray – a lot.  Life in the zone isn’t so bad – after all, it’s my life and I’ve learned to be grateful for every day of it. 

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2 Comments (+add yours?)

  1. Lupus Adventurer
    Jan 14, 2014 @ 06:43:28

    CG&H, I have done the methotrexate for lupus, and have been glad to be off it. It has its place, but it was really hard on me generally. It did help control the CNS involvement, but while taking it lupus went after my liver. Then was the first biologic infusions in a clinical trial (rituximab) and now Benlysta infusions (belimumab.) Hang in there! LA

    Reply

  2. romie3
    Jan 14, 2014 @ 21:28:38

    LA – Thank you for your comment and for sharing your experience! They want me to start taking infusions of Zometa next, so that’s in the works. Hope you are doing as well as you can be and are enjoying a happy new year! CG&H

    Reply

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